The Center for Rare Childhood Disease is moving full speed ahead! So far they are on track to open this August, yeah! This last week we made HUGE progress on the clinic by painting the exam rooms fun shapes and colors for the kids to enjoy. I was thinking of Wylder every second and how he would have especially loved the red polka dot wall! After a couple days of prepping, taping and going a bit cross eyed with my momma and Robyn (from TGEN) we were ready for the paint and brushes. The volunteers came in full force this Saturday~
It was just what so many have dreamed this clinic would be. It was a community that came together to be a part of something BIGGER. And to top it off … the rooms came out beautifully.
I unfortunately caught my first cold in almost 6 years this weekend as was unable to help in the painting festivities. I was so disappointed. I did help with all the prep work before my sickness came on with a vengeance, but I am so disappointed I did not see the community come together with my own eyes and paint brushes in hand. So I too am cherishing all the photos taken. I am slowly on the mend and anxious to get back to the clinic so we can now get the lobby in tip top shape and ready to go. This weekend was certainly a reminder of what having a bug and feeling down is like. I could not help but think of Wylder and so many children that do not get to feel 100% on a day to day basis. It was heartbreaking and a reminder for me to appreciate the days I do get to fell 100%.
I also, wanted to remind you all about the decorative tile opportunity for the clinic. I have a few more details on it now from TGen. We are planning to hang decorative tiles on a wall in the lobby to create a community ‘art piece’. This masterpiece will come together with the help of local artist Joan Baron (www.joanbaron.com). As part of this instillation kids, parents, grandparents, and friends are invited to paint 4” tiles. Each tile is $20 and the proceeds will go additional items needed for the clinic. When kids and families come to the new space, they will be able to see their tile as well as the tiles created by the other kids and families.
The tile painting party will be held at the new clinic this week and I will post as soon as I know the final date(s) and time(s). It is looking like it will be Thursday evening or Saturday.
If you are out of state and want to participate and do a tile with or for a kiddo in your life please message me. You can either send me a sketch of what you would like on your tile and I will do my best to draw if for you … or if there is an “as you wish pottery” in your area you can do your own 4” tile there and ship it to me. Please email me anytime if you want to participate from afar. Shannon@ wyldernation.org I will of course continue to post pictures of this amazing-ness coming together as it happens.
This upcoming Saturday the 20th will be our one year mark without Wylder James in our arms. It seems impossible most days and we are feeling much anxiety this week. We have already received a few cards and notes from many of you in anticipation of this date and we thank you all so very much. We miss our Wylder beyond words. We know that all things are possible because of him … but it feels like much is impossible without him. Wylder we will see you in our dreams little one. You are so loved. xoxo
Painting the Clinic
Posted by July 14, 2013 6 Commentson