Wall Street Journal

Many of you have seen this Wall Street Journal article going around Facebook, but I just had to share it here on Wylder’s blog too.  It is absolutely worth the read … just an incredible story.

Steven and I knew this article was coming and we were anxious to read it,  but WOW, the magnitude of this journey and all that it entailed is a compelling story of hope.  Wall Street Journal, we think that you are amazing.  Thank you for shinning some light by sharing this story that needed to be heard!  

Keep up the fight NPC kiddos and your families, you are doing it! The Children’s Crusade (Niemann Pick TYPE C)


Hemple Twins

Hemple Twins



  1. Shannon, Thank you for sharing this on your blog. We are all one big family, no matter what type we are dealing with.

  2. Cathy Johnson says:

    Wow! Just wow! In one of my favorite comedies of all time, “Galaxy Quest”, the character Jason Nesmith’s tag line is “Never give up. Never surrender.” Since I have become acquainted with the NPD and MPS III communities, this line has new meaning for me. Every time I hear it, I think of all of the NPD families I have come to know and love – you are all the embodiment of never giving up. I am proud to be a supporter, an advocate and an activist. With hope always – Cathy

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