Boston Bliss

We got the skinny on the Boston Marathon from our pal Phil.  He said it was an amazing day!  A fantastic run for him, an unbelievable turn out of supporters for the team and certainly a represention of BOSTON STRONG.  He said he must have high fived over a half a million people that day on his run.  That sounds like Wylder to me :).  The energy and love sounded extraordinary.  We truly wish we could have been on the sidelines, but we were absolutely cheering you on from AZ.

loa supporting his big brother and phil

loa supporting his big brother and phil

The team did send out the photos from the day and WOW, not one bad shot and the smiles were everywhere.  Here are just a few;

rockstars

rockstars

April 21 2014 - Genzyme - 2014 Boston Marathon - Race Day - 297 April 21 2014 - Genzyme - 2014 Boston Marathon - Race Day - 182

the best dude!

the best dude!

April 21 2014 - Genzyme - 2014 Boston Marathon - Race Day - 104

best sign ever, ha ha ha!!

best sign ever, ha ha ha!!

Quinn's momma eileen and Kai

Quinn’s momma eileen and Kai

Patient partner Will

Patient partner Will

April 21 2014 - Genzyme - 2014 Boston Marathon - Race Day - 030

sweet quinn

sweet quinn

April 21 2014 - Genzyme - 2014 Boston Marathon - Race Day - 013

This was a video put together of all of the patient partners (including us) that could not attend the marathon, showing their support for their runners!  We were certainly all there in spirit.

https://www.dropbox.com/s/kcvvwmzw3qcm75z/Running%20team%20introductions.mov

The running for rare disease team is truly a extraordinary group of people.  Thank you for all you do!!  Thank you to all of you who donated to Phil’s cause, he pours his heart and soul into this team and him running with Wylder has meant the world to our family.

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Sounds like you had a wonderful run Wylder.  We miss you.  We love you.  See you in our dreams little darling.  Thank you for your brother.  xoxo

Comments

  1. Phil is unbelievably inspirational. A pure human angel on earth running with heaven’s warrior angel. Thank you Phil!!

  2. Cathy Johnson says:

    Phil, Kai and the entire Running for Rare Disease Team are shining examples of true commitment and love. I hope some day to be able to meet them all and offer my thanks in person!

    • That is the prefect description of that team Cathy! Maybe 2015 will be your year and mile 14
      To cheer them on in person?! You never know …. :) xoxo

  3. Cathy Johnson says:

    It really WOULD be wonderful to put that on my “ta-done” list for 2015, Shannon!

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