Countdown Mode

It almost doesn’t feel real that the First Annual Wylder Nation Foundation Event is only a few weeks away.  July 12th is right around the corner!!

As we are knee deep in preparation we are excited for what the night has in store.  This is going to be the start of something great for kiddos like Wylder, I can just feel it.

HUGE shout out to our sponsors for the event!

Verizon-Wireless-Logo-300x109 GHWF-Logo-No-Border MGA  CVS2



When Wylder passed I thought the idea of his future was gone too.  First day of school, baseball, best friends, wedding … everything.  But truth is, his future is just different now.  It is in part this foundation, helping others, and so much more.   It is the idea that his life created change for the good for others.  It is a community of people (like you) that surround us and continue to grow and believe in all things Wylder.  With the outlook and prayer that one day a baby WILL get his or her “traditional” future because of Wylder and Wylder Nation.   His future is forever.


We are excited to meet those of you that have gotten tickets that have followed this blog for years, those friends we have not seen in a long time, those we love so much … and everyone in between.  To have you all in one room, for one cause …  well, my cup runith over.  We are excited to show our ideas and perspective of how the course of a diagnosed child’s medical journey can be different with your support.  And we thank you.  Thank you ALL for your support from near and far, and for believing in all things Wylder.  We have said it before, and we will say it again, none of this would be possible without YOU!  Thank you.

I just HAVE to share that Chelsea and Eileen will be there too!!  Trek and Quinn’s momma’s.  Sarah (Jacob’s momma) desperately wanted to come too, but is in the wheel house with baby #3’s due date right around the corner.  We feel so blessed that this extended family of ours will be there in support.  We share an incomprehensible commonality, and it just becomes more clear that we will all continue to support one another forever and always.  And Chels is bringing baby girl Vesper, eek!  Can’t wait to squeeze her.  Koa’s got a date now.

Versper Ingram

Versper Ingram

If you haven’t got your tickets, you can get them at the link below.  They are $125 each and that includes dinner, drinks, live entertainment and so much more.  We are excited to announce we are filling up so don’t wait to get your tics.

A few questions have come up about the attire for the evening.  It is formal but not black tie.  Suites and cocktail dresses are perfect.

There may be a few hiccups being our FIRST annual event, but we are hopeful you will see how much love is being poured into this.  I believe that children battling NPA and other storage disease will be impacted for the good in the very near future.  They will know there are people fighting for them, searching, and supporting.  Journeys for these children and their families will change and become easier as we search for options, treatments and more individualized care!

As we work late into the evenings in preparation we feel you Wylder James.  We wish we had you in our arms, but we will persevere in your honor.  We pray this will be a successful evening that will be the start of something bigger for other “Littles” because of YOU.  We love you and we miss you.  See you in our dreams, and in the lights at the event.  xoxo

Wylder its own affiliation and is my personal voice and lessons from Wylder how I see it as his momma. What I write on here are my thoughts and opinions about my experience and not necessarily a reflection of Wylder Nation Foundation as a non-profit organization. 


  1. Cathy Johnson says:

    I echo your excitement about the Gala, Shannon. I love what you said about a child having his or her “traditional” future – I believe with all of my heart that this is true. The work that you and Steven are doing with WNF is, in a word, HOPE! WNF and the whole lysosomal storage disease community will always have my support. One of my husband’s guy pals came by the other night when I was working in the gardens and complimented me on the Garden of Hope. And much to my surprise, told me that he knows all about its meaning because my husband had told him all about “my cause”. I am overwhelmed with love and gratitude that my hubby who, although loss of his infant daughter makes the whole subject of childhood fatality a very difficult subject for him, supports and is proud of my small part in the fight to change the future for families impacted by these diseases and that he, too, has boarded the Awareness Train! My older daughter is coming with me to the Gala. We are so looking forward to this wonderful event! xoxoxo

    • Mommy and Daddy says:

      This is so beautiful and amazing Cathy. Thank you for sharing about your husband and it is so special that he too is so supportive. We are really looking forward to meeting you and your daughter. Thank you, thank you for all your support always! xoxo S

  2. We cannot wait-party in Denver for an AMAZING cause!!!! love you guys:)

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