A long over do update

How does the time fly between writing these days? Oh I know, travel, the foundation, a bout of mastitis that had me down and out for days, trying to figure out how tend to my clients with a baby that only wants to breastfeed, very real grief and a little one I just want to snuggle on all day long! Hmm, that is how. Tee hee. Well, I do miss you all between writings and I always feel like there is so much more to update on than I have time to write about.

The 2 years date without Wylder in my arms came and went. It was a very difficult day and I am certain it always will be. Even tough I have begun to figure out how to celebrate Wylder on impossible dates like his birthday, his diagnosis day, and Christmas …. this particular date is not one I fair well on. I think the idea of celebrating it just does not work at ALL for me and trying to see the good, well that certainly does not work either. It truly is just a day of reflection for me.   To say I am so very proud of Wylder and all he continues to do is just an absolute understatement, but that does not take away the pain that is presence is not here in the same way I need it to be as his momma. So I thought of him all day long, and just let my heart feel as it was supposed too.

wylder

Wylder would be so proud of the zesty-ness of his little brother Koa. Oh my goodness is he sooooo easy to love. He is so happy and so very busy, just as I had prayed for and how I believe all little boys should be.

He is 4 months old, and will be turning 5 months on August 8th. This is what Koa can do to date.

Roll from his back to his tummy and his tummy to his back (that a mobile baby in my option). Has learned the impact of a SCREETCH! Started eating solid food, which he digs. Weighs full16 lbs. Is a mad man in his jumper. Can move toys from one had to another. His hair is getting more and more red by the second, making him look as fiery as he is. He believes in co-sleeping as much as I do and refuses the crib, sorry daddy-o. Smiles and laughs everyday. He has some wicked bare patches and calics that make his hair, well, interesting. He loves to swims everyday. Can sit in a tripod position for a few seconds at a time. He knows who is mommy and daddy are. He has discovered is feet and even has the flexibly to suck on his own toes. Is super ticklish. Can give kisses and blow raspberries. He is awesome.

post pool body shot

post pool body shot

oatmeal goofy face

oatmeal goofy face

snuggles when sleeping

snuggles when sleeping

koa's eyes are the exact color of the ocean, no accident

koa’s eyes are the exact color of the ocean, no accident

Bouncy fun

Bouncy fun

tripod

tripod

photo-5

Hair! ha ha

Wylder could do all the things that Koa is doing now, but not this early and not with this much spunk and force. He much preferred snuggling didn’t like being on his tummy at all (which we later learned was because of his large organs) and just loved to chill in the sling and or on my shoulder as much as possible. Koa prefers moving as much as humanly possible (tee hee).

Click on this link to see the roll video; IMG_6642

We are off to the Niemann Pick conference tomorrow and to see some of my amazing family in San Francisco (more cousins for Koa). We are looking forward to seeing some friends we met at last years conference and new friends we have only every talked to on the phone or met through photos. Among them are Jacob’s mommy, daddy, and baby sis.   And Courtney and Justin’s sweet son Garrett. Although, Steven got to me Garrett last weekend at Garrett’s golf tournament, and my jealous radar could hardly take it.   I just can’t wait to squeeze him for myself. Steven has mentioned he would like to bring Garrett home with us so he could have a golf partner in crime; I think his parents just might mind a little bit!

Garrett and steven

Garrett and steven

We miss you Wylder. We see you in every sunset. Thank you for your brother, we love him so much. Thank you for showing us our way to help as many s possible as quickly as possible with your foundation. We are listening. We miss you and we love you. See you in our dreams. xoxo

wylder2

Comments

  1. Cathy Johnson says:

    I though of you all day on that 2 year day, Shannon, with aching heart and arms around you and Steven. There are no words… On the smilier (is smilier a word?), my “little” red-headed daughter and I were out shopping last night and giggling at Koa’s hair as we drove home. She is rooting for that red to keep on coming! He is an absolute doll. He looks every inch the little firecracker he is! So happy you are going to get to meet Sarah and Josh. I know there is such a special bond between all of you who were struggling at about the same time. It will surely be a bittersweet time and I know you will all love on each other and let your hearts feel what they need to while you continue to work together to find ways to slap NPD silly. Love to you all with hope always! xoxoxo
    P.S. – I thought exactly the same thing when I saw the picture of Steven and Garrett – “Steven, you lucky dog!”

    • Mommy and Daddy says:

      Thank you for thinking of us Cathy. I too am hoping Koa’s firecracker highlights stay put, tee hee. Meeting Sarah and Josh was so very special, they are such a delightful family with HUGE hearts and Garrett is a total LOVE bug. We really do want to take him home for ourselves (tee hee). xoxo

  2. beautiful update Shannon! that sucks about mastitis, I hate when that happens:( I am so sorry I missed the 2nd anniversary of Wylder’s death. I remember that morning wanting to write to you, but got pulled away and never got back. I am sending you so much love, I know that is the worst day of your life. I loved all the beautiful pictures of baby Koa, he is such an angel and give him a baby high five for me for stealing some prime bed real estate from daddy-hehe:)!!! xoxo ,Chelsea

    • Mommy and Daddy says:

      Thanks Chels. Yes, Mastitis was a major drag, I am so glad it is gone. Koa says baby high five back, and cosleeping ROCKS! tee hee. xoxo

Speak Your Mind

*