How does the time fly between writing these days? Oh I know, travel, the foundation, a bout of mastitis that had me down and out for days, trying to figure out how tend to my clients with a baby that only wants to breastfeed, very real grief and a little one I just want to snuggle on all day long! Hmm, that is how. Tee hee. Well, I do miss you all between writings and I always feel like there is so much more to update on than I have time to write about.
The 2 years date without Wylder in my arms came and went. It was a very difficult day and I am certain it always will be. Even tough I have begun to figure out how to celebrate Wylder on impossible dates like his birthday, his diagnosis day, and Christmas …. this particular date is not one I fair well on. I think the idea of celebrating it just does not work at ALL for me and trying to see the good, well that certainly does not work either. It truly is just a day of reflection for me. To say I am so very proud of Wylder and all he continues to do is just an absolute understatement, but that does not take away the pain that is presence is not here in the same way I need it to be as his momma. So I thought of him all day long, and just let my heart feel as it was supposed too.
Wylder would be so proud of the zesty-ness of his little brother Koa. Oh my goodness is he sooooo easy to love. He is so happy and so very busy, just as I had prayed for and how I believe all little boys should be.
He is 4 months old, and will be turning 5 months on August 8th. This is what Koa can do to date.
Roll from his back to his tummy and his tummy to his back (that a mobile baby in my option). Has learned the impact of a SCREETCH! Started eating solid food, which he digs. Weighs full16 lbs. Is a mad man in his jumper. Can move toys from one had to another. His hair is getting more and more red by the second, making him look as fiery as he is. He believes in co-sleeping as much as I do and refuses the crib, sorry daddy-o. Smiles and laughs everyday. He has some wicked bare patches and calics that make his hair, well, interesting. He loves to swims everyday. Can sit in a tripod position for a few seconds at a time. He knows who is mommy and daddy are. He has discovered is feet and even has the flexibly to suck on his own toes. Is super ticklish. Can give kisses and blow raspberries. He is awesome.
Wylder could do all the things that Koa is doing now, but not this early and not with this much spunk and force. He much preferred snuggling didn’t like being on his tummy at all (which we later learned was because of his large organs) and just loved to chill in the sling and or on my shoulder as much as possible. Koa prefers moving as much as humanly possible (tee hee).
Click on this link to see the roll video; IMG_6642
We are off to the Niemann Pick conference tomorrow and to see some of my amazing family in San Francisco (more cousins for Koa). We are looking forward to seeing some friends we met at last years conference and new friends we have only every talked to on the phone or met through photos. Among them are Jacob’s mommy, daddy, and baby sis. And Courtney and Justin’s sweet son Garrett. Although, Steven got to me Garrett last weekend at Garrett’s golf tournament, and my jealous radar could hardly take it. I just can’t wait to squeeze him for myself. Steven has mentioned he would like to bring Garrett home with us so he could have a golf partner in crime; I think his parents just might mind a little bit!
We miss you Wylder. We see you in every sunset. Thank you for your brother, we love him so much. Thank you for showing us our way to help as many s possible as quickly as possible with your foundation. We are listening. We miss you and we love you. See you in our dreams. xoxo