We Lost our Littles Today

Our sweet baby got his Angel wings today at 5:15am.  We were all snuggled together in our big bed …. Steven holding is left hand, and me his right (all night long).  I woke up out of instinct and turned on a small lamp, I just knew he was getting ready to leave us … just then his pulse oxsemiter started to beep.  I turned it off and woke up Steven.  We left NOTHING unsaid.  We squeezed him and kissed him over and over.  We told him how unbelievable proud we are of him, that he has done more in his sweet three years then most can do in 100.  We told him we wanted him more than he ever would know.  We told him we would miss him so very much and would see him again.  He was so peaceful and so quiet.  He truly looked like an Angel.  We told him about his family waiting for him in Heaven and that he would have pain no longer … then he was gone. We love you so much Wylder James.

We opened our bedroom door and let his beautiful spirit go free.  We held him and cried and looked at the BEAUTIFUL day outside.  Wylder picked the most beautiful morning and made it so peaceful and calm for Steven and me.  We took off all his tubing …. We held him and walked with him and he looked SO beautiful and SO free.  We gave him a bath and got him ready for the beach … Which is exactly where he is going. 

We are taking our Warrior to the island of Maui with family … a place as you all know very dear to our hearts.

We left nothing unsaid.  We were right there when he came into this world and we were right there when he left.  His spirit is free, and his beautiful body was just such a gift. I held him on the patio for over an hour and read him his sweet book … “darling baby sleep in peace.  You make life, so complete”.  Then the mortuary arrived to pick him up and his daddy carried him to the car.  We gave him a few sweet final kisses and watched him drive away.

It has been such an incredibly hard morning …. But Wylder did this in his own way and it was so peaceful and calm.  No extra meds, no crisis … nothing.  Just bliss.  After he left we came inside and saw stacked dishes in our sink from last night’s dinner as a family … perfect! I am so happy we just left those dishes sitting there and spent every second with Wylder.  NO REGRETS!

Wylder James will be so missed and touched the lives of so many.  We feel numb right now … but together.  We are firm believers that our thoughts create reality and so we are sticking close together and staying positive … just what Wylder has taught us is important.  We will miss his sweet face so much.  He was such a precious little boy and he brought so much joy to our lives.

After our family returns from the Island of Maui we do plan on having HUGE celebration of life ceremony to enjoy his life with all of you.  There are so many people he has touched and that have supported us beyond words … we want to celebrate with all of you here in the Valley.  Thank you so much for loving Wylder and supporting our family.  I will post more on the Celebrations here later. 

Uncle Puppy wrote me a note this morning and I think it is perfect … “As far as I’m concerned Wylder won his battle against Niemann Pick A.  He took that terrible disease, owned it, and turned it into a teaching tool for life lessons.  People will never forget … especially me.”

In Lou of flowers please make donations to Wylder Nation and/or National Niemann Pick Disease Foundation and tell a friend about our Angel and his beautiful life.  We will post further information on our Maui plans and how you can all participate from a far … Warrior Style!   We thank you for being on this journey with us every step of the way … all our love. 

#RIPWarriorWylderJames#WylderNationFOREVER

Comments

  1. oh Shannon, I knew, I was sitting here in Laos about to go to bed and I knew I had to get on Wylder’s site. After your post yesterday about his grandparents I thought about him all day, I am so sorry, we are crying for you and Steven. I am so glad he was in your arms where he belongs. we love you so much, please let us know if you need anything. we have so many people in Maui who can help you with whatever you need. love, love, love

  2. Much love to all of you. How peaceful. Much love and hugs from another NP angel’s mom.

  3. Emily Kelly says:

    Shannon and Steven,
    We are both saddened and strengthened today with this news. We are so blessed to have learned of courage and love from you both and wylder. My heart is heavy today but I look at this blue bird sky in the Rockies and think of the beautiful place the warrior has gone. We love you all so much and send prayers for peace and safe travels to Maui. All our love…
    Emily and Alex

  4. Thinking of you two today, he is such a beautiful sweet angel! I am so sorry, I cannot imagine. I wish we were still in Maui to meet you two! We will send our love from here for sure!

  5. Ainsley Brown says:

    Shannon and Steven,

    I have been following Wylder’s journey for a while now. I was so heartbroken to see your Blogs title today. What a precious and beautiful little boy you had. I cannot imagine your pain.
    You are in my thoughts and prayers.
    Ainsley
    Xo

  6. Kellye Alexander says:

    Wylder has touched so many of us. Shannon and Steven, I think the most important lesson Wylder has taught me is to be in the moment with the ones you love. We so often run around getting things done and always want to think about what we need to do for our future. While important, we do not want to take away for the moments we can share right now. Thank you Wylder for reminding me how important this is.

    Also, What a lesson of unconditional selfless love. Thank you Laffoon family for sharing this life story with us.
    Kellye

  7. There are no words to express how sorry I am for your loss. Please know that we are here for you and will be praying constantly for you and your family. We love you guys. Deanna

  8. my heart goes out to you and Steven… Thank you for teaching me…how to live in the moment!

  9. Please forgive my loss of words, Shannon and Steven. Do you know I dreamt of him last night? Sweet, dearest Wylder James, how we love you xoxoxoxox

    We are so blessed to “know” him.

    • SHANNON AND STEVEN, I TOO AM SO LOST FOR WORDS AT THE MOMENT. WHEN LESLIE, MY PRECIOUS SISTA HAD TOLD ME SHE HAD A DREAM ABOUT WYLDER, I TOLD HER I HAD A DREAM TOO BUT COULD NOT REMEMBER ANYTHING ABOUT IT ALL I KNOW IS I WOKE UP CRYING MY HEART OUT. I FELT SO UNEASY ALL DAY LONG. WE WENT OUT TO EAT AND IT WAS A BIT LATE WHEN WE GOT HOME.THE FIRST THING I DO IS TURN MY COMPUTER ON TO FACEBOOK. WHEN I DID,AND WHAT I SAW RIGHT IN FRONT OF ME, I BEGAN CRYING SO HARD,AT THAT MOMENT I KNEW WHAT MY DREAM WAS ABOUT. I COULDNT CONTROL MY TEARS AS MY HEART WAS SPLIT INTO . OUR HANDSOME LIL WARRIOR, WYLDER JAMES LAFFOON HAD GONE TO HEAVEN AND WE DIDNT GET TO TELL HIM HOW MUCH WE LOVE HIM OR EVEN SAY GOOD BYE FOR NOW. LESLIE AND I BOTH KNOW THAT HE IS IN HEAVEN NOW AND PAIN FREE AND DOING ALL THE THINGS HE COULD’NT DO HERE ON EARTH. WE LOVE AND MISS YOU LIL WARRIOR MORE THEN YOU WILL EVER KNOW. WATCH OVER MOMMY AND DADDY EVERYDAY. ALWAYS MAKE THEM FEEL LOVED MORE AND MORE AS TIME GOES BY. YOU’VE EARNED YOUR WINGS BABY BOY SO FLY HIGH WYLDER JAMES,FLY HIGH OUR LIL WARRIOR. REST IN PEACE SWEETHEART AND KNOW HOW MANY LIVES YOU HAVE TRUELY TOUCHED. GOD BE WITH YOU SHANNON AND STEVEN ALWAYS. xoxoxoxoxoxoxoxox

  10. Words can’t express the feelings I have for your family. Every time I drove through the pali tunnel i would send positive energy to Wylder, you and Steven, and at nights me and the boys would prayer for peace and happiness for Wydler. Your family has taught ours how to truly live in the moment, how to let the small things go, and to hold onto the most important parts, our health and happiness. When you come to Maui if there is anything we can do please let us know.
    Love the Ruiz-Rocketts

  11. Elizabeth Wilson says:

    I found your story through Chelsea and have been following along for a few months. I’m terribly sorry to hear the news of your WARRIOR. I will be praying that you find peace during this time of loss. Your son touched so many lives and was a blessing to countless people. You may never know the fruits of your labor until you see Wylder again in heaven.
    Praying for you today,
    Elizabeth Wilson

  12. David Evans says:

    I believe you were blessed to have him in your life, I also believe he was blessed to have you. My prayers are with you. He has touched me already and I have never met him, Thanks Wylder James for making my life better today.

    Sincerely
    David Evans

  13. Cathy Johnson says:

    Oh Shannon and Steven – there are no words to say how sorry I am that you have lost your Warrior. But there is peace in this, too. He is free. You know he will always be in your hearts. And there must be strength in the knowledge that Wylder reached so many people with his message of love. Please know, too, how sweet it is to know that he was in your arms when he left. There is nothing those of us so far away can do except to send our love and our prayers. You are a remarkable and beautiful family and nothing will ever change the wonderful life you made for Wylder. Thank you for sharing him with us – we are blessed to have “known” him.

  14. Nanci Glassman says:

    Steven & Shannon,
    Wylder did indeed win against NP-A. His life meant so much to so many people. He educated all of us about the value of a day on this earth. You should certainly be proud of him and everything he accomplished in such a short time. Yes, our hearts are broken. But, there is a joy in knowing that his transition was in peace and in your arms. May God give you strength in this very difficult time.

    With Love,
    Nanci & Mike

    • Laurie High says:

      A beautiful tribute of a beautiful boy. Your family is in my prayers
      Love,
      Laurie High (relative of Kaitlyn Bourgealt)

  15. Amanda Christmann Larson says:

    Steven and Shannon,
    For once in my life, I have no words. I am so sorry for your loss, but I am also overwhelmed by the light and love you all have been able to share because Wylder showed you the way. I know I was touched by your family, and so many others have been, too. So many people spend a lifetime not knowing that light, and your little Warrior managed to shine it so brightly in three years that he brought hundreds of people together with nothing but love. What a guy!

    My heart is broken for your pain right now, but I know that light will shine on.

    Love and hugs,
    Amanda

  16. Hi Shannon,

    You don’t know me, but I heard about your family through the Images AZ article and have been following Wylder’s journey since then. I just first wanted to say how sorry I am to hear about his passing this morning. I have been speechless and touched when reading your posts chronicling his life . Not only have you been able to convey what really matters in this world – you have done so with such grace. Living in the moment is key and you and your family have demonstrated that in a beautiful way. My heart goes out to you. Thank you for sharing your thoughts and Wylder’s beautiful life. I will keep this with me always!

    Love and prayers,
    Kelly

  17. I always felt connected to Wylder because he was diagnosed on my birthday. It’s broke my heart to read this.I hope you can continue to be as strong as you have been and continue to beat the seemingly unbeatable things in life. Here’s just a bit love and prayer from Virginia.

  18. Shannon, Steven, and Catherine,

    I read your blog daily and today I was so sad about this news. I am also amazed by your strength and the way you have made every minute count. You have shown so much to all of us about selfless love and the gift of having a positive outlook thru it all. I will keep all of you in my thoughts and know that the memories you have created will comfort you.

    Laurie

  19. Shannon and Steven
    I am very sorry for ur loss. Words can not
    express that enough. Just know that he will always
    Be missed and remember. We love you guys.
    I am alway here if u need me. Much love and
    Prayers coming ur way

  20. Aunt Sue says:

    LOVE – one word but it says it all. Uncle Bernie and Aunt Sue LOVE Wylder and his most extraordinary parents. We are so proud and happy to be part of this wonderful family.

  21. Wylder James,

    One day as i walked into your home your papa asked me a question …. Are you always smiling and this happy all the time? Yep I had the most wonderful job taking care of the sweetest boy and couldnt help but smile knowing I got to spend the day with you :) Thank you so much for choosing me to be your nurse. I am truly blessed to have been a part of your wonderful journey. I learned so much from you and your sweet family. I will take Your life lessons with me each and everyday. I already miss you so much and will never forget you and your cute elvis smiles. Shannon , Steven and maddie Lou thank you for sharing your little angel with me. You guys will always have a special spot in my heart. Im here for you whenever you need me.

    Nurse Rachel

  22. Jarrett Ingram says:

    My heart breaks for the pain and loss that you two are going through right now. I am so sorry for your loss and am glad you were together in the end. You both are incredible parents and as I read your post I couldn’t but feel the love you all shared for each other. Know that we are sending love from Laos and plan on doing something special for your sweet boy from here. Even though they never met, I liked to think that Trek and Wylder were somehow best friends. I hope that wherever they are, they are having a good time together now.

    Much love,

    Jarrett

  23. Olivia Perkins says:

    We love you both so much. Bless your hearts- we are praying for God’s peace, comfort & Love to surround you. . .

  24. Alice Daxon says:

    Shannon and Steven all the words have been said by the comments before me. I was so saddened to just now read that Warrior Wylder had earned his Angel Wings. Not because he has gone on to a place where he can be free of pain, but because of the pain ahead for you two beautiful parents learning to let him go. You gave him a lifetime of love in his three years, and oh the things Wylder has taught me about living in the moment and appreciating my very own special son. Know I will never forget Wylder and your amazing family. Now I just am enjoying the playdate going on in heaven with Kaitlyn, Faith, Trek and Wylder…I can just see the laughing, giggles, running & playing going on, but especially their beautiul smiles. My thoughts & prayers are with you and your family.

    Alice Daxon

  25. Sue Branham says:

    Shannon and Steven, my heart is breaking for you. Wylder is such a beautiful boy. I’m so happy you had the time with him and will see him again one day. Life is just not fair, I could never understand why precious little ones have to go before their parents, but I guess we will know one day. I am praying for God’s grace to be with you in the coming days.

    I am Jarrett’s aunt and we just went through the same thing with Trek. I know they are playing together in Heaven.

  26. Hi Shannon and Steven,

    My heart and thoughts are with you. So sorry to hear that today Warrior Wylder James got his angel wings today, but I love how he was with you both. And you were able to give him lots of love. May he be dancing free with all the other angel babies

    Such incredible love between you all.

    xxx

  27. I’m Chelsea & Jarrett’s aunt and wanted to send my love to you during this time and always! I’m so glad you were able to be with Wylder to the end. Such a peaceful story. I know Trek & Wylder are running around & playing together with their Heavenly Father!

  28. Emma Lawton says:

    Hello, I read the Ingrams blog and learned of your sad news. Your blog post is lovely, it sounds like he had everything he needed from you both. Stay strong, peace, love and hugs, Emma – UK xxxx

  29. Sending you and your family so much love. Wylder has been truly inspirational and, although we are strangers, he has touched our family immensely.

  30. Brett Berger says:

    Shannon and Steven, I pray for God’s comfort for you. I am sorry for your loss, but i am so happy that you were able to have those final moments and come to this point with no regrets. It is very touching and reminds us all to embrace everything we have as a gift and not a right.

  31. Carmen maría mom's Natalia spain says:

    Siento mucho la perdida de tu hijo… Otro Angel se ha ido al cielo… Os acompaño en este dolor desde España.

    Lo siento mucho. Con amor.

    Carmen Maris

  32. Dear Shannon and Steven,
    Please accept my condolescenes on the loss of your Warrior.Word just can’t express how I feel.My heart cracks alittle more as a young one passes.You can be proud of him,he truly was a Warrior.

    Katelyn’s Wen

  33. Sheri, Sammy & Brayden Sprouse says:

    Shannon & Steven….I can’t begin to tell you how heavy my heart is and how saddened you must be. I know that you are at peace with knowing that your Warrior is now playing and having a great time with his family in heaven. I am so happy that one day I will be able to run and play and finally meet this amazing Little Man that you have been kind enough to share with us. I may not have ever gotten to meet him face to face but he has absolutely touched my heart and I am thankful to you all for letting us get to know him.

    May love and peace continue to surround you.
    Sheri, Sammy & Brayden Sprouse

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