Our sweet baby got his Angel wings today at 5:16am. We were all snuggled together in our big bed …. Steven holding is left hand, and me his right (all night long). I woke up out of instinct and turned on a small lamp, I just knew he was getting ready to leave us … just then his pulse oxsemiter started to beep. I turned it off and woke up Steven. We left NOTHING unsaid. We squeezed him and kissed him over and over. We told him how unbelievable proud we are of him, that he has done more in his sweet three years then most can do in 100. We told him we wanted him more than he ever would know. We told him we would miss him so very much and would see him again. He was so peaceful and so quiet. He truly looked like an Angel. We told him about his family waiting for him in Heaven and that he would have pain no longer … then he was gone. We love you so much Wylder James.
We opened our bedroom door and let his beautiful spirit go free. We held him and cried and looked at the BEAUTIFUL day outside. Wylder picked the most beautiful morning and made it so peaceful and calm for Steven and me. We took off all his tubing …. We held him and walked with him and he looked SO beautiful and SO free. We gave him a bath and got him ready for the beach … Which is exactly where he is going.
We are taking our Warrior to the island of Maui with family … a place as you all know very dear to our hearts.
We left nothing unsaid. We were right there when he came into this world and we were right there when he left. His spirit is free, and his beautiful body was just such a gift. I held him on the patio for over an hour and read him his sweet book … “darling baby sleep in peace. You make life, so complete”. Then the mortuary arrived to pick him up and his daddy carried him to the car. We gave him a few sweet final kisses and watched him drive away.
It has been such an incredibly hard morning …. But Wylder did this in his own way and it was so peaceful and calm. No extra meds, no crisis … nothing. Just bliss. After he left we came inside and saw stacked dishes in our sink from last night’s dinner as a family … perfect! I am so happy we just left those dishes sitting there and spent every second with Wylder. NO REGRETS!
Wylder James will be so missed and touched the lives of so many. We feel numb right now … but together. We are firm believers that our thoughts create reality and so we are sticking close together and staying positive … just what Wylder has taught us is important. We will miss his sweet face so much. He was such a precious little boy and he brought so much joy to our lives.
After our family returns from the Island of Maui we do plan on having HUGE celebration of life ceremony to enjoy his life with all of you. There are so many people he has touched and that have supported us beyond words … we want to celebrate with all of you here in the Valley. Thank you so much for loving Wylder and supporting our family. I will post more on the Celebrations here later.
Uncle Puppy wrote me a note this morning and I think it is perfect … “As far as I’m concerned Wylder won his battle against Niemann Pick A. He took that terrible disease, owned it, and turned it into a teaching tool for life lessons. People will never forget … especially me.”
In Lou of flowers please make donations to Wylder Nation and/or National Niemann Pick Disease Foundation and tell a friend about our Angel and his beautiful life. We will post further information on our Maui plans and how you can all participate from a far … Warrior Style! We thank you for being on this journey with us every step of the way … all our love.
We Lost our Littles Today
Posted by July 20, 2012 36 Commentson