Wylder Nation Foundation?!?!

Steven and I had a meeting this week to learn about 501C3 Non-Profit Organization.  Although it is quite complicated and a bit overwhelming we definitely got the scoop from the best of the best … from new friend and nicest lawyer ever met Luke Reynoso.  Steven and I are now getting our ducks in a row to move forward with Wylder Nation Foundation, and are finalizing details, like how, when and exactly what it will all look like.  We are so excited to be learning and moving forward with this … we can feel our wylder guiding us through every step. 

We were overwhelemed after we send out the blog that we were thinking of doing a non-profit.  The emails of support and ideas you all sent our way was incredible .  HUGE thanks to  the other law offices also offering their services.  The goodness of poeople and what comes are way, is always absolutely incredible .  We are working on a mission statement now and deciding if it is best to piggy back with another 501C3 or start our own.  We a re very excited to be exploring the whole idea. 

Research and support young scientists is what we REALLY want to do.   Have any of you every seen the movie Extraordinary Measures??  It is sooooo good and reminds me so much of Steven.  I think all of his past research exploring both Easter and Western is really going to come into play … and will no doubt help many kids and families in the future,.  I have said it before and I am sure I will say it again …. one day because our Wylder, we truly believe with our whole hearts there will be treatment options.  Better know in our home as just plane HOPE.  We hope in the future that the research we would support will not only be of value to children with Niemann Pick A, but other storage diseases and childhood illness.  We feel excited, we feel Wylder and we believe.

As I menstioned it is a complicated process and we are still in the begiing stages.  We are hopefull by Christmas to have scoop, decision made and more “set up”.  Just in time to start 2013 off on the right foot, right? 

I have also been building a sub-website from wylderjames.com that will be where I put products I create in his honor (totally separate from the 501c3 ect).  I am REALLY into it, and it feels like the right thing to do right now.  It should be up and running by the end of the weekend … yippee (I cannot wait for you all to see it)!  Some of the updates will include tweaking Wylder’s website so please feel free to let me know your thoughts as you see them popping up. With all my tech-savvyness this last week, I also figured out my email was on the fritz!?!?  Gotta love that teach gremlin.  So if you emailed me and did not hear back …. please feel free to shoot me another one.  I promise I was not ignoring anyone.  :) I also get a second email that I am going to star using.  Shannon@Wyldernation.org 

a sneak peak

The power of Wylder WILL change the world!  #WylderNation xoxo

sweetest grin ever! march 2011



  1. Adriana Klas says:

    You are amazing!!! Totally amazing and I am so excited to see everything you guys have been working on! Sending love, hugs and kisses your way! XOXO

  2. This is such huge and exciting news!! I love that Warrior Wylder James will most certainly change the world….he’s got the best Warrior Mommy and Daddy ever. If anyone can make this happen, you both will and know that we are all in your corner with love and support xoxoxox

  3. Kelly Mahanes says:

    That is so awesome!!! I’m so happy and proud of you and Steven!! wylderjameslafoon lives on everyday! He may be gone, but never forgotten!! congratulations!! I’m with you all 110 percent!!! Xoxoxo

  4. yeah!!! i am sooo excited! can’t wait to see all that comes from Wylder’s sweet life-xoxo

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